|
|
Post by IPH NET on Feb 13, 2010 12:29:12 GMT -6
|
|
|
|
Post by miriam on Feb 13, 2010 16:59:22 GMT -6
Thank you
Miriam
|
|
|
|
Post by jabalcuza on Mar 15, 2010 13:26:12 GMT -6
Si sirve de algo, diré que mi embarazo fue muy bien, aunque por precaución me provocaron el parto a las 36 semanas y media. No tome ninguna medicación, solo la habitual para las embarazadas. Bueno, a las 35 semanas, me hospitalizaron y empezé a tomar prenidsona, hasta que me hicieron una cesarea. Si necesitas saber algo más me consultas. Un saludo
|
|
|
|
Post by miriam on Mar 20, 2010 15:27:47 GMT -6
Hi All,
If anyone can convert Spanish into English please do feel free to make corrections because I'm relying on the automated service and understandably it slips up.
Here's the best I could get of Jabalcuza's posting ------- If it serves of something, I will say that my pregnancy was very well, although by precaution they caused me the labor at 36 weeks and average. Do not take any medicación, alone the habitual one for the pregnant. Good, to the 35 weeks, they hospitalized me and I began to take prenidsona, until they did me a cesarea. If you need to know something more consult me. A greeting
Thanks Jabalcuza you're the second person with IPH that I've heard of who has had babies. It's always great to hear such good news
|
|
|
|
Post by jabalcuza on Mar 21, 2010 9:14:08 GMT -6
Hello:
I continue asking for pardon, but the translation is automótica to the Englishman. My case was published in Bronconeumologia's Files. June, 1998. Number 6, Volume 34. In case not podais to accede to him(it). To put in touch with your doctor, assurance that he(it) if it(he,she) can. Podreis to verify that my pregnancy(embarrassment) I carry out successfully. My daughter today has 15 and is completely healthy.
|
|
|
|
Post by miriam on Mar 25, 2010 15:09:50 GMT -6
Dear Jabalcuza,
Many thanks for that. I'm trying to track down the article but there's only from 2004 on their website. I was wondering what the authors names are or the page numbers so that I can get it through Pubmed. wonderful that your daughter is 15. That's great news.
Muchas gracias por eso. Trato de localizar el artículo pero hay sólo de 2004 en su sitio web. Yo me preguntaba lo que los nombres de autores son o los números de página para que yo lo puedan conseguir por Pubmed. maravilloso que su hija es 15. Eso es gran noticias.
Kind Regards,
Miriam
|
|
|
|
Post by jabalcuza on Mar 31, 2010 7:12:05 GMT -6
Espero que te sirva de ayuda, es Archivos de Bronconeumologia. Volumen 34. Junio 1998. Núm. 6. Los autores son Miralles, F. Torres, J. No puedes localizarlo en internet, pero si a través de tu médico. Normalmente en las bibliotecas de los hospitales tienen las revistas. Espero te sirva de ayuda y cualquier pregunta que tengas, intentaré contestarla lo mejor posible. He encontrado un traductor que parece mas fiable. es www.tradukka.com. Un beso Espero que te ayuda, es medline archivos. Tomo 34. Junio de 1998. N º 6. Los autores son Miralles, F. Torres, J. Usted no puede encontrar en el Internet, sino a través de su médico. Normalmente, en las bibliotecas de los hospitales tienen las revistas. Espero poder servirle y ayudarle a tener alguna pregunta, voy a intentar todo lo posible para responder a ella. He encontrado un traductor que parece más fiable. es www.tradukka.com. |
|
|
|
Post by jabalcuza on Mar 31, 2010 7:25:12 GMT -6
Miralles F, Torres J, Robles M: Pregnancy in patients with idiophatic pulmonary
hemosiderosis. Presentation of a case. Arch. Bronconeumol 1998; 34: 317-31
|
|
|
|
Post by miriam on Mar 31, 2010 15:53:21 GMT -6
Many thanks Jabalcuza- I'll try to get a copy of the article. Are you keeping well now? All the best, Miriam
Muchas gracias Jabalcuza- trataré de conseguir una copia del artículo. ¿Mantiene bien ahora? Todo el mejor
|
|
|
|
Post by miriam on Mar 31, 2010 16:02:34 GMT -6
To Cooper, I was wondering if you know the dose regimen your little one's on. I presume it's been adjusted over time based on response.
Miriam
|
|
|
|
Post by Cathrb on Feb 26, 2011 5:26:49 GMT -6
I was diagnosed at age 4. I am now 35. I have 2 healthy girls (ages 3 and 6), healthy pregnancies and no complications from IPH.
|
|
|
|
Post by miriam on Mar 4, 2011 6:15:25 GMT -6
My daughter's been on azithromycin (as a trial as an antiinflammatory) for about 5 months now. I feel that it's helped because she had been complaining of chest pains but not frankly bleeding but the symptoms have improved - probably multi-factorial because she also had nerve pain.
Here's a reference for it's use in cystic fibrosis. Chest 2009; 136:498-506. Carolyn L. Cannon, Steven L. Brody and Michael J. Walter Avraham Beigelman, Sean Gunsten, Cassandra L. Mikols, Ilan Vidavsky, Model of Allergic Asthma Inflammation in a Noninfectious Mouse Azithromycin Attenuates Airway
|
|
|
|
Post by IPH NET on Mar 22, 2011 2:29:34 GMT -6
I was diagnosed at age 4. I am now 35. I have 2 healthy girls (ages 3 and 6), healthy pregnancies and no complications from IPH. My daughter has two healthy boys 10 and 5 no complications except the youngest was a few weeks premature. Had heart and lung doctors in the bullpen and in the delivery room just in case but the pregnancies were unremarkable. Regards, IPH NET P.S. Please join the board, Your input is valuable in so many ways! |
|
