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Post by Stacey on Mar 10, 2011 16:46:26 GMT -6
Hello. My son, age 6, has IPH and was successful on immunoglobulin for a year and a half. Recently, his body starting rejecting the immunoglobulin. He is also on Cellcept. I was wondering if people could share their medicines and what seems to have worked for them. We are having a hard time getting the right combination. It seems he went into a remission for a year, but is having a hard time now. Thanks!
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Post by miriam on Mar 11, 2011 17:18:50 GMT -6
Dear Stacey,
Hydroxychloroquine, azathioprine, steroids, cyclophosphamide (oral / intravenous) and 6 mercaptopurine have all been used in hemosiderosis. More recently the possible benefits of acetylcysteine was publicised.
Hope this helps.
Regards,
Miriam
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Post by Michelle on Feb 28, 2013 5:30:53 GMT -6
Hi Stacey, using ImmunoGlobulin from relatives could lessen the rejection. Check with your doctors on this possibility, each state has their own rules on family donating for specific recipients.
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